My name is Ashley Maple, and I am a hobbyist photographer living in East Tennessee. When our fourth child Archer was born in 2010, my family began a devastating rare disease journey that continues to this day. After an excruciating year of testing following some concerning vision symptoms, Archer was diagnosed at 18 months old with a peroxisome biogenesis disorder. Peroxisomal disorders are rare, genetic conditions that cause deafness, blindness, global developmental delays, adrenal insufficiency, neurological issues, and feeding issues, and are almost always terminal in childhood. Understandably, our lives completely changed upon receiving this heartbreaking news.